tag:blogger.com,1999:blog-2421947801808954302.post2656996853855329069..comments2019-12-31T13:32:59.562-08:00Comments on Baby Bradley and his Fight with Infantile Spasms: Our StoryCarrie Meadhttp://www.blogger.com/profile/14822174498425485023noreply@blogger.comBlogger12125tag:blogger.com,1999:blog-2421947801808954302.post-81284199112755319712018-07-14T01:52:50.686-07:002018-07-14T01:52:50.686-07:00My daughter 3 month has been infantille spasm.now ...My daughter 3 month has been infantille spasm.now we are under treatment on ACTH.when we used 6OIU injection seems like spasm is gone but still under treatment.<br />Anonymoushttps://www.blogger.com/profile/04787966362782654092noreply@blogger.comtag:blogger.com,1999:blog-2421947801808954302.post-27903906149633849622015-04-30T21:15:21.398-07:002015-04-30T21:15:21.398-07:00Hello Carrie, thanks for sharing your testimony. I...Hello Carrie, thanks for sharing your testimony. I needed to hear something posting from infantile spams.Anonymoushttps://www.blogger.com/profile/02616966235294809909noreply@blogger.comtag:blogger.com,1999:blog-2421947801808954302.post-21531077900055069002014-02-09T09:09:53.362-08:002014-02-09T09:09:53.362-08:00Hi Carrie
Your story is inspirational. Our beauti...Hi Carrie<br /><br />Your story is inspirational. Our beautiful daughter Sofie was diagnosed with IS two days ago. The EEG showed hypsarrhythmia. That was the worst day of my life. Stories like yours have been inspirational. I will probably elect to do ACTH but will also do B6. Our pediatric neurologist started her on Keppra until we get a longer EEG (8 hr) and an MRI. I pray we too can have a positive outcome like yours. Rahulhttps://www.blogger.com/profile/00439608006269985084noreply@blogger.comtag:blogger.com,1999:blog-2421947801808954302.post-65024226610094131522013-07-22T19:17:16.586-07:002013-07-22T19:17:16.586-07:00Hi Bernie!! Thank you for reading our blog! It was...Hi Bernie!! Thank you for reading our blog! It was our goal to get the message out to as many people that we can! I am praying for Emma, and we will keep her in our thoughts, and hope for a speedy recovery! Please keep me updated! Here is my Email, Peacock.carriee@gmail.com , I know that this is a scary thing and it is a horrible thing to hear but there is hope!!! I hope to hear from you soon! Carrie Meadhttps://www.blogger.com/profile/14822174498425485023noreply@blogger.comtag:blogger.com,1999:blog-2421947801808954302.post-46234478087478000842013-07-19T18:43:16.908-07:002013-07-19T18:43:16.908-07:00Hi Carrie
My name is Bernie. Im soooo happy to he...Hi Carrie<br /><br />My name is Bernie. Im soooo happy to hear Bradley is doing better! My daughter was diagnosed with IS on 06/25/2012. Reading your story, i felt like it was me. I did rhe exact same things!!!! She is on prednisolone, B5, Keppra and clonazapam ! I know so many! She is asl oon xzantac because they make her tummy upset. Its been ALMOST 4 WEEKS still has a very tiny spasms here and there. She used to hve 2-3 a day! Tey just increased her steroids to 4.5 mls. Her next eeg is next week!I was so sad to read about infantile spasms and the outcome. i pray my Emma makes a quick recovery just like Bradley =) Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-2421947801808954302.post-47484519425681733332013-03-01T19:23:55.137-08:002013-03-01T19:23:55.137-08:00We are doing great! Bradley took to the first line...We are doing great! Bradley took to the first line of treatment, he is almost off of his steroids, we are keeping him on the topomax and the b6 for now. I am so happy to hear that Baltazar is doing great!! please keep us updated on his progress. My email is peacock.carriee@gmail.com . How is he doing off of the ACTH?? Is he also spasm free ?!Carrie Meadhttps://www.blogger.com/profile/14822174498425485023noreply@blogger.comtag:blogger.com,1999:blog-2421947801808954302.post-82133663699393006932013-02-28T19:07:51.788-08:002013-02-28T19:07:51.788-08:00How are you doing? How is your boy? We finally got...How are you doing? How is your boy? We finally got a clean Eeg. Our story is similar to yours except our son, Baltazar was put on Acth. Thought I would check in.Zsofianoreply@blogger.comtag:blogger.com,1999:blog-2421947801808954302.post-91943537506767441712013-02-01T20:23:53.080-08:002013-02-01T20:23:53.080-08:00Your family is in our prayers! Your family is in our prayers! Carrie Meadhttps://www.blogger.com/profile/14822174498425485023noreply@blogger.comtag:blogger.com,1999:blog-2421947801808954302.post-42824554861297132922013-02-01T16:25:38.912-08:002013-02-01T16:25:38.912-08:00My son was diagnosed with IS on 12/10/12. Thanks ...My son was diagnosed with IS on 12/10/12. Thanks for posting. Zsofianoreply@blogger.comtag:blogger.com,1999:blog-2421947801808954302.post-21516762585136301452013-01-10T21:33:44.520-08:002013-01-10T21:33:44.520-08:00Carrie as much as im sad to read your story im gla...Carrie as much as im sad to read your story im glad you shared it. It made me cry. Thank you for sharing. Im so sorry you and your family went through this. Bradley your story touched me :') be strong sweetheart you have wonderful parents that will do anything for you. You are an angel and i hope one day I get the chance to meet you. Chrissyhttps://www.blogger.com/profile/14853318302870618402noreply@blogger.comtag:blogger.com,1999:blog-2421947801808954302.post-34466460858600696872013-01-10T20:32:42.513-08:002013-01-10T20:32:42.513-08:00What an amazing story! All of those prayer warrior...What an amazing story! All of those prayer warriors out there praying for Bradley are all God's firefighters proving that God can put out any fire! I'm so happy to hear & see that little man is smiling again! Stay strong & we'll continue to pray for him & y'all!!<br />Love,<br />The HessonsAmanda Hessonnoreply@blogger.comtag:blogger.com,1999:blog-2421947801808954302.post-29534385654237307052013-01-10T19:21:46.689-08:002013-01-10T19:21:46.689-08:00Baby Bradley, what amazing parents you have :) lov...Baby Bradley, what amazing parents you have :) love to all of you and I hope to keep seeing smily faces on your journal ;)Jenhttp://www.barefootsnapshots.comnoreply@blogger.com